UncleJesse wrote:
Since last July, she's been amazing. I don't know how she fought it; where she got her strength? We figured things were looking up at the start of the new year. After making it through last 2015. She survived so many close calls the past eight years and last year was the hardest. She fought off an ICU stay and a mid-calf amputation. Previously, had 13 heart stents, a ruptured appendix resulting in a colostomy, so many PIC lines that failed she got a chest port installed and needed IV TPP while GI H-Pylori was addressed with IV antibiotics. Most of last year was on IV antibiotics for osteomyelitis and CRP and WBC was off the chart. Systemic Scleroderma, constant pain and dermis would peel off to the fascia, exposing tendons. Treated with multiple cadaver skin grafts and I'd dress wounds twice a day with either anacept gel, silvadene, iodosorb or wound vac depending on the wound condition. She hadn't been able to tolerate solid food, survived on Boost, yogurt, milkshakes and coffee with whipped cream for calories. The April 3rd hospitalization was just going to be routine blood transfusion and extra immunoglobulin and steroid therapy and come back home stronger, like all the other times treating CIDP.
Instead, the better part of April was a fight and the team of MDs exhausted all options and could no longer prevent the immune system from attacking organs.
We were lucky that she got to say goodbye to family. I held her hand when it was her time.
We were lucky that we were together since age 15 and were never apart.
Life is very hard without her yet I know when the MD's had no advice and she felt and knew it was time, I wanted her to be relieved of suffering. I'd rather take the fight of living without her than have her continue to suffer. That helps but I lover her so much, I know we are lucky in many ways but I also suffer because we had reasoned and hoped for another chance to get by and move on to the next dream, next goal together.
Since last July, she's been amazing. I don't know... (
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Hello Jesse, you don't know me as I am mostly just a 'reader' of OPP for the last 3 years. I don't know your pain yet of losing the love of your life, but I live in fear every day of it being the last day of being with my love. I know only with the grace of God, will I be able to bear the pain. I'm so very sorry for your loss! She was a very beautiful young woman and I'm sure she was just as beautiful in later years. She was so blessed to have a man to love and support her thru all the years, as you were blessed to have hers. Not all couples have that kind of love. May God give you comfort and strength to finish the life that He has blessed you with. Sam W.