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Lyme Disease Victims Are Second Class Citizens
Dec 28, 2013 22:30:56   #
Ragness
 
It is amazing to me that people with other diseases like Cancer, AIDS, etc. are treated with respect. They receive medication that helps them, if not completely heal, at least to be treated enough to give them hope of getting well bmp and/or control the pain without the help of pain relievers.

not so for those of us with Chronic Late-Stage Lyme Disease. Those of us who are cursed with Chronic Late-Stage Lyme Disease have no choice: we are cursed forever to sit in our recliners or hospital beds at? home and do nothing but take drugs for pain. There is a fantastic treatment for CLSLD, but it is expensive, so those at the CiDC choose to ignore us, claiming we do not exist. I am here to tell the whole USA emphatically that we do very definitely exist! We exist in vast numbers, but not one of us has any hope of being put in remission or getting any relief from the incredible pain from which we suffer every single day of our lives because the CDC refuses 2 acknowledge we exist! I cannot get any help from a doctor unless I can pay that doctor cash! But because I am permanently disabled and live on Social Security Disability, and the treatment cost roughly $10,000 per month, I cannot afford to pay a doctor cash for my treatment. Where is the ACLU when you want them? Is even the ACLU prejudiced against us? I get nothing but rude comments from people and treated like a skid row bum when people find out about the medication I must take. I would like nothing more than to stop taking my pain medication; however, I will suffer until the day I die because the CDC will not allow me the treatment I need in order to find any kind of quote on quote remission"

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Dec 28, 2013 22:56:34   #
Ve'hoe
 
There is a chiropractor/acupuncture diplomate/naturopath,,, whose name I will find tomorrow for you,,, I believe he is in Maine,,, who is having fantastic results,,, with lymes,,, and the other diseases that accompany it,,,,,,,,
I will find that for you tomorrow,,, I hope, that this chance meeting was arranged by God,,, so that I would tell you of this, man.

I am sorry for your pain, and I know how bad it is,,, I do not know if anything can be done, but I don't believe things happen by chance



Ragness wrote:
It is amazing to me that people with other diseases like Cancer, AIDS, etc. are treated with respect. They receive medication that helps them, if not completely heal, at least to be treated enough to give them hope of getting well bmp and/or control the pain without the help of pain relievers.

not so for those of us with Chronic Late-Stage Lyme Disease. Those of us who are cursed with Chronic Late-Stage Lyme Disease have no choice: we are cursed forever to sit in our recliners or hospital beds and take drugs for pain. There is no cure for CLSLD, & those at the CDC choose to ignore us, claiming we do not exist. I am here to tell the whole USA emphatically that we do very definitely exist! We exist in vast upnumbers, but not one of us has any hope of being put in remission or getting any relief from the incredible pain from which we suffer every single day of our lives because the CDC refuses 2 acknowledge that we exist! I cannot get any help from a doctor unless I can pay that dr. Cash! I
It is amazing to me that people with other disease... (show quote)

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Dec 28, 2013 23:03:38   #
slatten49 Loc: Lake Whitney, Texas
 
Ragness wrote:
It is amazing to me that people with other diseases like Cancer, AIDS, etc. are treated with respect. They receive medication that helps them, if not completely heal, at least to be treated enough to give them hope of getting well bmp and/or control the pain without the help of pain relievers.

not so for those of us with Chronic Late-Stage Lyme Disease. Those of us who are cursed with Chronic Late-Stage Lyme Disease have no choice: we are cursed forever to sit in our recliners or hospital beds and take drugs for pain. There is no cure for CLSLD, & those at the CDC choose to ignore us, claiming we do not exist. I am here to tell the whole USA emphatically that we do very definitely exist! We exist in vast upnumbers, but not one of us has any hope of being put in remission or getting any relief from the incredible pain from which we suffer every single day of our lives because the CDC refuses 2 acknowledge that we exist! I cannot get any help from a doctor unless I can pay that dr. Cash! I
It is amazing to me that people with other disease... (show quote)



Although I have heard of Lymes disease, your comments are a revelation for me. All I knew (?) was one got the disease from ticks, or at least, I thought so. I wish I were able to offer some consolation, but my ignorance on the subject does not allow for doing so. I will look into it, via the internet, and acquaint myself with your problem.

In lieu of my ability to offer help, I will wish the best for you, and hope that progress is made into the treatment,/cure for Lymes' disease in the near future.

If you choose to stay with us on the OPP, I also welcome you aboard our vessel for discussion. Maybe some on this forum can bring forth helpful information for you!

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Dec 28, 2013 23:05:24   #
slatten49 Loc: Lake Whitney, Texas
 
Ve'hoe wrote:
There is a chiropractor/acupuncture diplomate/naturopath,,, whose name I will find tomorrow for you,,, I believe he is in Maine,,, who is having fantastic results,,, with lymes,,, and the other diseases that accompany it,,,,,,,,
I will find that for you tomorrow,,, I hope, that this chance meeting was arranged by God,,, so that I would tell you of this, man.

I am sorry for your pain, and I know how bad it is,,, I do not know if anything can be done, but I don't believe things happen by chance
There is a chiropractor/acupuncture diplomate/natu... (show quote)


:thumbup: Good man, Ve'hoe! I agree with your last statement! :wink:

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Dec 29, 2013 12:41:50   #
Ragness
 
That is very kind of you; however, there are a couple of problems with that: 1. I live in AZ; 2. I have tried Chiropractic and Acupuncture without help - this is a BACTERIAL INFECTION. The Hyperbaric Chamber Treatments I discussed that cost roughly $10,000/mo work because the bacteria is anaerobic bacteria, so the oxygen k**ls the bacteria. I'm embarrassed. I did not put my story on here to get sympathy from people; I thought if this were a political forum, maybe my words would be heard in DC (even if they didn't print my final, edited article without the typos). God bless --

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Dec 29, 2013 12:45:34   #
Ve'hoe
 
Don't be embarrassed,,, and this is getting traction,, just not a lot,,,, there are electrical treatments for the bacteria, and that is what this guy does,,, look up the site of a dr Hulda Clarke,, she did some work in this area,,, and this other guy works that way also,,,,
Dr's are becoming aware,,, but as you are aware, it masks itself in many confusing ways,,,,

Ragness wrote:
That is very kind of you; however, there are a couple of problems with that: 1. I live in AZ; 2. I have tried Chiropractic and Acupuncture without help - this is a BACTERIAL INFECTION. The Hyperbaric Chamber Treatments I discussed that cost roughly $10,000/mo work because the bacteria is anaerobic bacteria, so the oxygen k**ls the bacteria. I'm embarrassed. I did not put my story on here to get sympathy from people; I thought if this were a political forum, maybe my words would be heard in DC (even if they didn't print my final, edited article without the typos). God bless --
That is very kind of you; however, there are a cou... (show quote)

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Dec 29, 2013 14:15:11   #
Ragness
 
I found her website, and I have to say, if even a portion of what she says is true (and considering there are doctors all over the world who subscribe to her theories, I tend to believe they are) I am quite impressed. I want a zapper & the cards for Lyme & pain. Then I'd just turn it on and leave it on! Thanks for pointing me in this direction! God bless you!

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Dec 29, 2013 15:00:01   #
slatten49 Loc: Lake Whitney, Texas
 
Ragness wrote:
I found her website, and I have to say, if even a portion of what she says is true (and considering there are doctors all over the world who subscribe to her theories, I tend to believe they are) I am quite impressed. I want a zapper & the cards for Lyme & pain. Then I'd just turn it on and leave it on! Thanks for pointing me in this direction! God bless you!


:thumbup: :thumbup: :thumbup: :thumbup: :mrgreen:

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Dec 29, 2013 17:17:06   #
Ve'hoe
 
The AMA ran her out of the country,,, for malpractice,,, I think it was because she was having success,,,

I tried the zapper,,,, it is really weird,,, it makes your throat hurt as though you were getting a cold,,, only for a bout a day....

The symptoms of Lymes mimic a lot of other things,,, and the bacteria lives in a sort of cocoon and can only be found outside it,,, so the tests don't work unless they get real lucky... so it is hard to diagnose,,,
slatten49 wrote:
:thumbup: :thumbup: :thumbup: :thumbup: :mrgreen:

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Dec 29, 2013 17:18:28   #
Ve'hoe
 
Still looking for that other Dr's name,,, he is similar...

Ragness wrote:
I found her website, and I have to say, if even a portion of what she says is true (and considering there are doctors all over the world who subscribe to her theories, I tend to believe they are) I am quite impressed. I want a zapper & the cards for Lyme & pain. Then I'd just turn it on and leave it on! Thanks for pointing me in this direction! God bless you!

Reply
Dec 29, 2013 17:19:39   #
Ve'hoe
 
GEt well,,, that would be a great reward!!

Ragness wrote:
I found her website, and I have to say, if even a portion of what she says is true (and considering there are doctors all over the world who subscribe to her theories, I tend to believe they are) I am quite impressed. I want a zapper & the cards for Lyme & pain. Then I'd just turn it on and leave it on! Thanks for pointing me in this direction! God bless you!

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