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I have decision to make, and would like some opinions.
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Nov 13, 2013 18:56:43   #
USpatriot77 Loc: USA
 
I am a 100% disabled vet who has suffered a TBITraumatic Brain Injury). I had every bone in my head and face crushed,and have seizures and other debillitating problems. I have had over 20 surgeries to repair and remove bone and blood clots from my brain. I have survived well, and still drive, hunt, and serve my country by working in public service. My advice is this. If your doctors feel that surgery will improve you general health and life, without a lot of risk, do it! If the risk is greater than the benefits, don't do it! After all, if you can get along the way you are, and you're leading a happy, growing life, why chance it? Good luck, brother! Keep us updated
lone_ghost wrote:
I was not going to put this here but it was actually my wife who has been arguing with me that suggested it, so here it is.

As many know, I lost 60% of the vision in my right eye during my military service. That was over twenty years ago and I have adapted. I can hunt, drive, work, with my glasses I see just fine, I do ok.

The reason I have the loss of vision is that I have a piece of shrapnel buried in my brain that is pushing on my optic nerve. It is stable and has not moved in all those years. They did not remove it because it would cause too much damage to surrounding tissue to reach it.
They have a new surgical procedure that has been successfully performed 3 times with 1 failure. That's one in three.
I could get this surgery and possibly regain up to 45-60% of my vision.
This is brain surgery, I have a chunk of metal in my brain that has been there a very long time.
I could die of course as with any surgery, but the one that gets me is that I could end up completely blind in my right eye rather than partially blind. Or I could gain vision.
Some one please tell me what you would do if given the choice. The surgery is covered, cost is not a factor. It really scares the hell out of me to be honest.
I was not going to put this here but it was actual... (show quote)

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Nov 13, 2013 19:38:13   #
AuntiE Loc: 45th Least Free State
 
lone_ghost wrote:
I was not going to put this here but it was actually my wife who has been arguing with me that suggested it, so here it is.

As many know, I lost 60% of the vision in my right eye during my military service. That was over twenty years ago and I have adapted. I can hunt, drive, work, with my glasses I see just fine, I do ok.

The reason I have the loss of vision is that I have a piece of shrapnel buried in my brain that is pushing on my optic nerve. It is stable and has not moved in all those years. They did not remove it because it would cause too much damage to surrounding tissue to reach it.
They have a new surgical procedure that has been successfully performed 3 times with 1 failure. That's one in three.
I could get this surgery and possibly regain up to 45-60% of my vision.
This is brain surgery, I have a chunk of metal in my brain that has been there a very long time.
I could die of course as with any surgery, but the one that gets me is that I could end up completely blind in my right eye rather than partially blind. Or I could gain vision.
Some one please tell me what you would do if given the choice. The surgery is covered, cost is not a factor. It really scares the hell out of me to be honest.
I was not going to put this here but it was actual... (show quote)


I already said, "No." My mother's voice just popped into my head reading others' comments. She had a standard phrase,

"When in doubt DON'T."

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Nov 13, 2013 22:47:00   #
No1Randi Loc: De Pere, Wisconsin
 
lone_ghost wrote:
I just turned 48, I have prayed, my wife is all for it. God has given me no answer. Dying is not a factor (if I die I will not care anyway right)? So best case, I gain some vision, worst case, I become completely blind in that eye or suffer irreversible brain damage.
I am really leaning towards leaving well enough alone.


I would not wish to be in your situation, however, with the small number of operations that have been tried and one of them failed, I feel you are probably correct in leaning towards the "leaving well enough alone". As you stated, the worst case could leave you completely blind, but a lot worse than that...you could end up with irreversible brain damage or both. That is really the underlying issue. No matter what...Keep God in your prayers. And God Bless You and Yours...

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Nov 14, 2013 15:46:53   #
Irish
 
Faith in God means “belief and trust”. I do have faith and thus “believe” that He answers when called for help or asked for direction, and I also have ‘trust’ that He is clear in His response. He promised “peace that surpasses all understanding”. So, after I’ve done my research and posed the problem to Him, I wait. If I have peace, I proceed. If not, I don’t. This works for me. You have received some great advice from others here and much information to consider.
You indicated that you said ”no” for now. So, I will pray for His peace for both you and your wife so that both of you may know you made the right decision.
Thank you for the freedom we all enjoy due to your military service and sacrifice. God bless.

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Nov 15, 2013 10:11:45   #
lone_ghost Loc: Wisconsin
 
Irish wrote:
Faith in God means “belief and trust”. I do have faith and thus “believe” that He answers when called for help or asked for direction, and I also have ‘trust’ that He is clear in His response. He promised “peace that surpasses all understanding”. So, after I’ve done my research and posed the problem to Him, I wait. If I have peace, I proceed. If not, I don’t. This works for me. You have received some great advice from others here and much information to consider.
You indicated that you said ”no” for now. So, I will pray for His peace for both you and your wife so that both of you may know you made the right decision.
Thank you for the freedom we all enjoy due to your military service and sacrifice. God bless.
Faith in God means “belief and trust”. I do have ... (show quote)


Thank you. See here is the thing (so everyone can better understand). This is a clinical trial, the surgery is free if I participate in the trial. I was contacted through my DR. because there are a limited amount of people with my exact situation who are still alive to test the procedure on.
Right now this procedure is not available through the VA, or any military hospital due to government regulation. If the clinical trial is successful, it would be. So the decision is not just for myself. Sorry I was not clear on this earlier in my post, I just found out myself through their second pitch.

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Nov 15, 2013 10:22:44   #
slatten49 Loc: Lake Whitney, Texas
 
lone_ghost wrote:
Thank you. See here is the thing (so everyone can better understand). This is a clinical trial, the surgery is free if I participate in the trial. I was contacted through my DR. because there are a limited amount of people with my exact situation who are still alive to test the procedure on.
Right now this procedure is not available through the VA, or any military hospital due to government regulation. If the clinical trial is successful, it would be. So the decision is not just for myself. Sorry I was not clear on this earlier in my post, I just found out myself through their second pitch.
Thank you. See here is the thing (so everyone can ... (show quote)



That only complicates it further...in my mind.

Yours is a heavy decision. I have no doubt you are up to it.

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Nov 15, 2013 10:23:29   #
1OldGeezer
 
lone_ghost wrote:
Thank you. See here is the thing (so everyone can better understand). This is a clinical trial, the surgery is free if I participate in the trial. I was contacted through my DR. because there are a limited amount of people with my exact situation who are still alive to test the procedure on.
Right now this procedure is not available through the VA, or any military hospital due to government regulation. If the clinical trial is successful, it would be. So the decision is not just for myself. Sorry I was not clear on this earlier in my post, I just found out myself through their second pitch.
Thank you. See here is the thing (so everyone can ... (show quote)


Sounds like you are doing pretty well in evaluating your choices and trade offs and possible benefit to others. God be with you.
1oldgeezer

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Nov 15, 2013 15:02:44   #
No1Randi Loc: De Pere, Wisconsin
 
lone_ghost wrote:
Thank you. See here is the thing (so everyone can better understand). This is a clinical trial, the surgery is free if I participate in the trial. I was contacted through my DR. because there are a limited amount of people with my exact situation who are still alive to test the procedure on.
Right now this procedure is not available through the VA, or any military hospital due to government regulation. If the clinical trial is successful, it would be. So the decision is not just for myself. Sorry I was not clear on this earlier in my post, I just found out myself through their second pitch.
Thank you. See here is the thing (so everyone can ... (show quote)


Hats off to you "lone ghost". You are one in a million. Here you are facing a very serious problem, which was brought upon you by serving our country, and yet again you are considering the needs of these other people while trying to make a life-changing decision for yourself. God is with you and will be with you no matter what your decision turns out to be. Stay strong and know that our prayers are with you.

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Nov 15, 2013 16:11:54   #
bahmer
 
No1Randi wrote:
Hats off to you "lone ghost". You are one in a million. Here you are facing a very serious problem, which was brought upon you by serving our country, and yet again you are considering the needs of these other people while trying to make a life-changing decision for yourself. God is with you and will be with you no matter what your decision turns out to be. Stay strong and know that our prayers are with you.


I would have a tendency to skip the clinical trial and wait until said operation is a bit more tested then. I thought that this was an operation that had been performed several times successfully. If it is still in the trial stage I would also wait for more clarity on said procedure.

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Nov 15, 2013 16:45:15   #
lone_ghost Loc: Wisconsin
 
bahmer wrote:
I would have a tendency to skip the clinical trial and wait until said operation is a bit more tested then. I thought that this was an operation that had been performed several times successfully. If it is still in the trial stage I would also wait for more clarity on said procedure.


If it were not for people participating in the clinical trials many surgical procedures would not be available today. When they told me about the procedure being developed as possibly life saving option for soldiers who suffer traumatic brain injury, and other veterans with similar conditions as mine, that really made me stop and think. Did not make my decision any easier, maybe even harder.

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Nov 15, 2013 19:33:02   #
votenoobama Loc: Texas
 
Hi Lone Ghost, It's V**enoobama here.
First off, I would not have the surgery because, in a few more years they will get even better at the procedure. I know how it is at the VA. Just wait! You have gone all this time with it so, there should be no hurry to fix it. Have a great day and God Bless America.

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Nov 15, 2013 21:54:32   #
lone_ghost Loc: Wisconsin
 
I have given this a lot of thought, I have listened to all of you who have given me your opinions on the matter and I thank all of you from the bottom of my heart for caring enough to even do so.

I am going to participate in the clinical trials. I will be telling my wife of my decision when she gets home from work in the morning. Other than the normal risks of any surgery all I stand to lose would be total blindness in my right eye which I experience every time my sinuses swell up anyway. I may gain relief from the blinding headaches, I may regain a significant amount of my vision. All worth while on their own to me. That is not why I have decided to do it though.
I can not in all good conscience walk away from something that could mean so much to wounded soldiers. I just can not do it. This procedure has far reaching applications beyond that I am involved in including currently inoperative brain tumors. I can not walk away from this knowing that I have the ability to help. That is just who I am.
Thank all of you for caring enough to help me with this decision. Thank You.

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Nov 15, 2013 22:42:13   #
slatten49 Loc: Lake Whitney, Texas
 
lone_ghost wrote:
I have given this a lot of thought, I have listened to all of you who have given me your opinions on the matter and I thank all of you from the bottom of my heart for caring enough to even do so.

I am going to participate in the clinical trials. I will be telling my wife of my decision when she gets home from work in the morning. Other than the normal risks of any surgery all I stand to lose would be total blindness in my right eye which I experience every time my sinuses swell up anyway. I may gain relief from the blinding headaches, I may regain a significant amount of my vision. All worth while on their own to me. That is not why I have decided to do it though.
I can not in all good conscience walk away from something that could mean so much to wounded soldiers. I just can not do it. This procedure has far reaching applications beyond that I am involved in including currently inoperative brain tumors. I can not walk away from this knowing that I have the ability to help. That is just who I am.
Thank all of you for caring enough to help me with this decision. Thank You.
I have given this a lot of thought, I have listene... (show quote)



What you are, LoneGhost, is an extraordinary man. I honor
and salute your decision!

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Nov 15, 2013 23:18:11   #
lone_ghost Loc: Wisconsin
 
slatten49 wrote:
What you are, LoneGhost, is an extraordinary man. I honor
and salute your decision!


Thank you. We were not put on this earth to be agents of our own self-fulfillment. We were put here to help each other. I am not an extraordinary anything, I am just a man that has an ability to help others due to what I have gone through in the past. I have often wondered in my earlier years why I had to live when all I wanted to do is die with my men, on the battlefield. I spent years of my life dealing with survivors remorse, PTSD, debilitating pain. I can not help but think, that maybe this is why.
I flat lined three times but those whiskey's just would not let me die, they brought me back from the dead three times, and I lived against all odds. 23 or so years later my unique injuries can possibly help treat soldiers today who suffer traumatic brain injury in combat, give them a better chance at a better quality of life than I had through medicine. Just as I did at 17 and signed up for the Marine Corps. this is no longer a decision, it is a duty, a responsibility. ooh rah!

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Nov 16, 2013 00:15:27   #
AuntiE Loc: 45th Least Free State
 
lone_ghost wrote:
Thank you. We were not put on this earth to be agents of our own self-fulfillment. We were put here to help each other. I am not an extraordinary anything, I am just a man that has an ability to help others due to what I have gone through in the past. I have often wondered in my earlier years why I had to live when all I wanted to do is die with my men, on the battlefield. I spent years of my life dealing with survivors remorse, PTSD, debilitating pain. I can not help but think, that maybe this is why.
I flat lined three times but those whiskey's just would not let me die, they brought me back from the dead three times, and I lived against all odds. 23 or so years later my unique injuries can possibly help treat soldiers today who suffer traumatic brain injury in combat, give them a better chance at a better quality of life than I had through medicine. Just as I did at 17 and signed up for the Marine Corps. this is no longer a decision, it is a duty, a responsibility. ooh rah!
Thank you. We were not put on this earth to be age... (show quote)


My perception from this post is you have possibly made a decision.

If such is the case, would you let us know in advance of the surgery? Further, when and if you do have the surgery, would you please have your wife keep us up to date on how you are. We know she will have much on her "plate"; however, you and your family are part of our family. Selfishly, there will be great consternation if we do not know how you and yours go forth. We may be able to provide online support for her, as well as you.

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